Monday, May 13, 2019

Everything.


As we’ve navigated and come to terms with living in this world of the Lymies - both in CELEBRATION for long-awaited answers as well as in TURMOIL with the knowledge of how difficult this disease truly is to live with and BEAT - I can’t help but feel overwhelmed and amazed by how my Rathen Jones has handled it all. From Day 1.
Not many people know that my sweetheart only had “ME” for a short 3 months {making a point to say this is 3 months of VOLLEYBALL & FOOTBALL SEASON} so let’s just wack that time in half - for the hell of it! Which means that my incredible husband had “ME” - the girl he THOUGHT he was marrying - for a mere 1.5 months. For 6 weeks, I was the bride he chose for his eternity... and then I wasn’t. And everything changed.
So as I watch him now, 3.5 YEARS LATER - with those long eyelashes that any girl (Ehhem: ME) would KILL to have - as he sleeps next to me {never farther than approximately -6 inches away at all times} ....and I am absolutely speechless.
.
**Rathen‘s internal voice says: “FINALLY!!!” 😝🙈🤣
.
I am speechless for God’s gift to me - for placing a man with so much strength, grit, and determination mixed with a love so gentle it hurts... he loves hard and he loves completely.
And as I’ve countlessly told the world about my intimate relationship with ROCK BOTTOM and write of the many times I’ve been “knocked down”...I’ve never ONCE reached out and had to grasp thin air as I’ve fallen. 
I reach out EVERY TIME and have countlessly found HIM on my way down - Sometimes he simply holds me up, letting me lean on him for strength. - Sometimes he lifts me into his arms completely; never letting go until I’m no longer too weak to stand - and still other times, we hit the ground together, as I pull him down with me. 
But NEVER have I fallen alone. And when we do fall, he often reminds me to simply turn and look at the stars.... and he points out those glitter linings that I preach so fondly about. HE is my glitter lining; my cure on the lowest days. 
He’s my spark and that light that keeps me going. ✨ 
He’s my soul and my breath and the hands that hold my universe together. 

He’s simply.... everything. ✨

Friday, May 10, 2019

Aaaaannnnnd.....that's a WRAPPED PACKAGE with a GLITTERY BOW ON TOP!

...AND NOW THE FIGHT BEGINS... 


Today was a quick "in and out" visit to get a quick immune boosting IV (This happened each and every day; called my "Chelation" ['KEY' - lation] IV). This IV is what supped me up with all of my B vitamins, iron, and other goodies they've been slipping me all week. 


** (The photos below also give a quick glance of what the main communal room looked like as well!) 



** [Kizzy (that's me) 👀✌ concentrating deeply on her morning smoothie as a needle is jammed into her arm for the 78th time this week alone.] 

On the topic of needles, I can't pass on the opportunity to applaud all of the clinic's nurses. They were absolutely EXCEPTIONAL and never had to poke twice... TAKE NOTE USA NURSES -- Cuz you suck. Sorry not sorry]

__________________________❤__________________________

Before we dive too deeply into today's activities, I have to give a shout out to one of the YUMMIEST DESSERTS I've had in my young adult life. Because this must be celebrated.....Yet, also mourned - because of course we found this DIME restaraunt on our LAST NIGHT.

(Doesn't it seem to always happen like that!?) 


As it goes, after each day of my treatments (that always end in very painful shots), we typically went directly back to the hotel to rest before dinner. More often than not, this meant room service... as I was just WAYYYY too exhausted to even move from bed. 



Last night, I fought through some pain and exhaustion and picked myself up out of a restless and painful nap I'd been trying to have and went to a restaurant that another patient had recommended to us. 




And it did NOT disappoint.




First of all, after any stem cell injections, I was unallowed to eat beef or pork for 24 hours. There is a whole science behind this, but quite honestly, I can't remember the entirety of the reason and just ate chicken or fish all week. 



(*CUE: Montana girl inside slowly dying ALL WEEK... since I got about 6-8 injections EVERY. DAY. - No yummy street tacos for me. But Rathen ate enough for the both of us combined! Lol) 




BUT!! I was able to eat some coconut shrimp with a pineapple/peach sauce and it MELTED in my mouth.




This was by far my favorite meal of the entire trip... even though I didn't have many "meals" since I was usually so sick.) 








To top it all off, here is the amazing dessert - Fresh pineapple ice cream that was served in half of a frozen pineapple with chocolate fudge underneath. Need I say more?!?! ❤❤❤❤





It was a great "last supper" in our little Tijuana week.


__________________________❤_________________________ 

Nowwwww!! 

Back to the Nitty Gritty.....


Today:

I was well enough this morning to eat more of that delicious avacado toast for breakfast, along with my daily fruit smoothie! 




So, we've talked about breakfast and we've talked about a little IV action... the only other thing on our check list was a final meeting with our friend Dr. Ben, as well as a meeting with the infamous and amazing Dr. Calzada himself. 










As we "checked out" of the Clinic, we were given all paperwork and testing results I had participated in throughout the last 5 days. 



Below are the images I mentioned seeing on our Day 1 summary! Using live blood microscopy (Also known as Dark Field Blood Analysis) these images can be seen of LIVE blood with just a small prick from your finger. 


It was amazing how much knowledge there is in only ONE drop of blood. Below, I will try to explain what is being shown. 


1. I'll begin with my devil friend, Mr. Lymie. 
Here, we can see ONE of the millions of the little guys swimming around in my bloodstream (small spiral looking worm - two-headed! YUCK). 

The GREAT news, however, is that Dr. Ben took several minutes under the microscope to find this guy swimming around. This means that the 21-day Doxycycline antibiotic I had just finished must have done some of the work for us. However, Dr. Ben highly suspected that the remaining Lyme were all still there -- just HIDDEN.

Those dirtbags. 


Lyme is known as one of the SMARTEST bacteria, for this reason alone. The dirty bounders are so smart, they see a common antibiotic coming to doze them over and they have the innate ability to MUTATE and CHANGE/HIDE inside my cells and DNA until the antibiotic goes away.... then they come out to play again!! 

This is why this road will be a long and hard one... they're tricky, smart, and have a superior self-perseverance reputation. 


* Deadpan face after blood draw * 
Dr. Ben: "One down, only 500 million to go...you're welcome."    
**EXTREME close up of what the spiral-shaped Borellia Lyme Disease looks like. 



2. Next, we look at the overall "health" of my cells. 

Below, labeled as "Red Blood Cells," is actually my mom's live blood draw that shows relatively "healthy" cells!

Next, we see the photo labeled as "Lemon Cells" (from MY blood draw). These cells that have lightened centers and have lemon and/or teardrop shaped cells (in comparison to my mom's relatively circular shaped cells)indicate that there is:

A: Lightened center color = Low B Vitamin levels (very common for Lymie Patients!)
I was pumped FULL of a high dosed Vitamin B12 via Intravenous Therapy this week. Low B levels can cause a whole slew of issues, including, but not limited to: extreme fatigue, numbness, memory loss, tingling feet, mouth ulcers, mood changes, consistent low-grade fever. (Sounding familiar to my many symptoms over the last 4 years?) 

B: The lemon and teardrop shapes = Severe INFLAMMATION
Our favorite word, right?! Not. Inflammation = PAIN PAIN PAIN.

C. The far right photo labeled as "Bartonella" is evidence of one of the several co-infections that is the root cause of my symptoms such as muscle aches, joint pain, headaches, brain fog, etc. 

Overall, we learned SOO SOOO much about this incredibly difficult and complex world I was so suddenly thrown into! 

Lyme Awareness is absolutely laughable in the United States and I can't believe the conversations I experienced this week with some fellow Lymies about their own medical journey... 
they were almost identical to that of my own!! 

(ie: "You're perfectly healthy" and "You are faking this illness" or better yet "You're seeking attention!") 

I am so grateful for my time spent with Dr. Calzada and his team this week. There were some very low lows, but there are always beautiful mountain tops as well.  

Life is a rollercoaster already... I've just added a few more swirly swirls and loopty loops!! Lolll 



 (*GET UP 10 HANDS*)

Dr. Calzada has advised and warned that the coming weeks WILL BE HARD (known in the Lymie world as "herxing") and I will also be detoxing my body for a fresh clean slate! 

Dr. Ben walked us to the door early this morning and said that I would most likely be "dead to the world" for at least the next full week, after receiving nearly 16 MILLION stem cells. But without a doubt, WE WILL BEAT THIS.



For now, I am just soooo blessed to have ANSWERS, to have medical, holistic, and dietic TREATMENT PLANS, to have the greatest and strongest SUPPORT SYSTEM by my side and to know... AGAIN...that when I was knocked down (HARD)?? 

I STILL GOT UP.

✌✌✌✌✌✌✌✌✌✌

Thursday, May 9, 2019

Thirrrstday: A Day Closer to Friday


Oh, a glorious Day 4. 

We didn't start off the day too hot but I can very gratefully say that I improved slightly after an hour or so into treatments. 

Today, we began with another Blood Ozone Therapy and received my daily dosage of Avengers blood for the day. 

If any kittens need saving from trees today, just let me know.
I'm feeling extra "super" now.




Our next highlight has been SHINING GLITTER throughout the whole week... good or bad... Olivia never fails to welcome us to the clinic every single day with a hug and a kiss. I don't think I'm exaggerating when I say that Rathen was Olivia's favorite "chico" to welcome into the office each morning. (LOL) 




And... moving right along... 

Since being a "fall risk" is cool and all, and someone accompanies me to the restroom most days, it was a nice surprise that we could both go at the SAME TIME. How efficient is that?! Genius.

Also, as a side note, the truest test of what an all-out 
COMPETITIVE MARRIAGE is like -- Well, let's just say... 
Suddenly, I screamed: "I WON."

(Started first, ended first) BOOOOMMMM. ☝💥💦💪





Today, I was also able to finally get my 💕Lymphatic Massage 💕

AKA: A very very supeRR duperrr light massage... not sure if I should even consider it a full-on massage since the entire length of my spine, shoulder blades and neck/skull have injection sites and are badly bruised!! 

 But I'll take what they give me! 

(And maybe a tiny little cat nap on that one too!) Lol


* No photos here ladies and gents... 

"This a family blog...........orrr is itttt????" 

(Inside joke... you're probs on the outside. Sorry not sorry) 


___________________❤___________________


And last and CERTAINLY THE LEAST....my daily Stem Cell Injections. 
(+More Ozone Shots to accompany each injection) 



** I was having a hard time showing/explaining to Dr. Ben exactly where my worst pain radiates from, so of course, Rathen hopped right in to point out exactly where each injection should go...
he knew where my pain was almost better than I did!!

(Since RJ has been the one who has soooo often been the one to massage out those gnarly knots and spasms for over 4 years now!!) 







I can't lie to you all and say that this week has been the best thing I've ever done or that I am suddenly and miraculously healed. If anything, this is some of the worst pain I've had in a looonggg time (if ever)


Every hour, I'm at war with my own body.
Every minute is a battle and every breath is a huge accomplishment; proving that I am pressing onward.... everrrrrrr onward. 


Dr. Ben warned me again today that this road would be a long and bumpy one... But it doesn't even matter... I could get knocked down 999,999 times... and I will still GET UP....Every. Time. 




I've had the greatest support system with me throughout 
EVERY THERAPY and EVERY "LOW VALLEY" MOMENT there was to have.

I truly couldn't have done it without my amazing Mother and devastatingly handsome Hubs

They deserve more credit than I could ever possibly give. 

Additionally... the support I've felt from my family back in the US of A has been incredible and quite honestly, humbling! 
(AKA: Daddy, Coy Boy Scotty, and ALLLLL the Ricedorff clan)


I've surrounded myself with some good ones, ya know?

THANK YOU THANK YOU THANK YOU.



Wednesday, May 8, 2019

Tres Dias -- I think this would roughly translate to, uh...."Day 3". (Spanish.... btw)



Day 3 came with a lot less pain, definitely fewer tears, and a whole new day to TRY AGAIN.

And nothing beats having this squad behind you every step of the way. --> ❤ ❤ ❤ ❤ ❤ 




Our day started off a lot better today, with a little time to sleep in and begin treatment around 11:00 am rather than 9 SHARP.... and thanks to our handsome sherpa/noble steed, my back also had a reprieve on the walk over to the clinic. 




My first treatments for the day was a nice Ionized Foot Bath, which pulls toxins and all that GUNK out of you!! Talk about DETOX!!! 

*** WARNING: DISTURBING IMAGES AHEAD!! 💩💥👀

My feet were placed in a nice and warm foot tub with a special gizmo machine that PUUULLLS out all of those heavy metals, toxins, and all other manner of "YUCK" from within... 


The photo below was taken after only about 3 minutes.
(Yellow = Kidneys and Urinary Tract/Bladder) 

 


Here it goes... 
turning that beautiful shade of POO POO BROWN!!!!



Then the bubbles started forming like something you'd see in pond scum and disgusting black flakes. 

THIS STUFF WAS INSIDE OF ME PE0PLE. 


My official "reading" after 30-minute soak: 

* Yellow = Detoxing from my kidneys, my urinary tract, and bladder

* Orange = Detoxing from joints

* Brown = Detoxing from liver

* White / Black / Red Flecks = Detoxing from my lymphatic system, heavy metals, and blood clot material






To top off the foot bath, the wonderful nurses cleaned, exfoliated and lotioned my feet with a mini foot reflexology massage. It was a great relaxing way to begin the day. 







Next! We went straight into some Blood Ozone Therapy. If you've followed my journey before, this is something I did very often last year. This therapy is based on the premise that autoimmune diseases, like Lyme, cannot thrive or grow within an OXYGENATED environment

During this therapy, a large amount of my own blood is taken out to then oxygenate and put right back in. 
(We are talking about "O3" Oxygen, not your usual "O2")

This therapy is relatively painless, besides the initial POKE of that massive as heck needle.... and then, unfortunately, my blood loves to run like molllaassassses.... so the process of getting that huge bag of blood I was talking about?
Yeah.... about 20 minutes of repositioning and digging that beautifully sharp needle in deeper and deeper.... but alas, 
WE GOT IT DONE. 






Once oxygenated, blood turns this awesome shade of bright, neon-colored Superhero RED and is gravity flowed right back into my veins, ready to fight for the Avenger Squad and kick some Lymie Ass. 

That bag was hanging about 10 feet in the air and only took about 1/4 of the time to go back in me as it took to pull it out!!

I guess I'm glad that my blood prefers to be 
IN my veins rather than OUT

Good things. Glitter linings. and Happy Therapies!



Soon after, I did some Magnetic Therapy and I could try to explain an amazing "pull it outta my booty" explanation of how the negative ions and atoms in my body react to the positive electrodes placed on my neck, shoulders, belly button, hips, knees, and ankles... 
then do a cool thing that leads to more cool things. 

To top it off, they even had one of those "weighted" eye masks that just feel heavenly for some unknown reason. So I may or may not have fallen asleep about 3 times during this therapy. (tehehe) 

Anyhow, I won't even pretend to know what exactly this therapy does or how it works but here's what it looked like from the outside looking in!! 

Extraordinary... I know.  


Of course, to end our day, we always get to meet with wonderful Dr. Ben who makes my back hurt a whole heck of a lot so that I'm crying all over his dumb crinkly paper doctor bed... 
(like really.... who else is exceptionally 
uncomfortable on those tables?!) 

Also seen below is a not so rare moment of making horrible faces as I try to breathe in and out as he shoves a 6" needle right into the base of my skull.....and then not pass out!! 

And yet, we always seem to leave with smiles and even sometimes some laughing is involved...



As of today, Dr. Ben has given me just over 12 MILLION stem cells. 
(About 4.5 Mil each day)

We concentrate on a new "pain" area each day and evidently... 
today was the skull. 

VERY PLEASANT. (Yiiiiikkkess

Day 1:  4 - 6 Injections under each of my shoulder blades

Day 2:  8 Injections below my bra line, straight down my spine...boom, boom, boom, boom.... x2

Day 3:  Too many to count injections into my neck and lastly, my skull... Not suggested. 

Day 4:  A mystery so far.... because I HATE HATE HATE when I see that cute little Hispanic nurse come walking into the communal room and call out my name for "shot time!" 

So, for now... I'm not quite sure what part of my body I want to be stabbed on tomorrow...but I'll be sure to let you know ❤✌💭




Here we are AFTER treatments today... 
half smile is better than no smiles 
and 
I'm taking today as a WIN!!

** Especially when we found a CIRCLE K convenient store across the street from our hotel and got to restock our snack pile!! 

SCORE. Annddd..... we out. 👊